Lupus Foundation of America

Lupus Foundation of America

@LupusOrg

Followers41.2K
Following1.3K

Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.

Washington DC
Joined on February 12, 2009

Statistics

We looked inside some of the tweets by @LupusOrg and here's what we found interesting.

Inside 100 Tweets

Time between tweets:
8 hours
Average replies
1
Average retweets
10
Average likes
30
Tweets with photos
10 / 100
Tweets with videos
0 / 100
Tweets with links
0 / 100

Last Seen Profiles

@MiNhyun_both1@MiNhyun_both1
@Feytull17820465@Feytull17820465
@____nene@____nene
@cdsallecordoba@cdsallecordoba
@_TheKarishma_@_TheKarishma_
@HAL93076993@HAL93076993
@CHACHACANSPEAK@CHACHACANSPEAK
@pENR2LNEhMC8D64@pENR2LNEhMC8D64
@luke_menz88@luke_menz88
@Birds_N_The_B@Birds_N_The_B
@Ramage_92@Ramage_92
@cygnethealth@cygnethealth
@jackdoyle901@jackdoyle901
@BidyarthiKeto@BidyarthiKeto
@shawnvanamburg1@shawnvanamburg1
@aaied58@aaied58

"We have learned a lot as 9 years have gone by since being diagnosed. We've learned just how important it is to be a unit in this process" Listen to Monique & Alvin share their #lupus journey as a couple & offer helpful tips from lessons they've learned. #blackhistorymonth

Study of #lupus subgroups underscores complexity of disease. Read more. #LupusReserachNews

From our new President & CEO to our new Board Chair to our research awardees, take a look at @ACRheum's article for the latest rheumatology news.

Study affirms association between #exercise and improved health outcomes for women with #lupus. Read more:

Having an invisible disease can be quite frustrating when no one can see how we feel. But there are ways to communicate our feelings, wants, and needs with others that don't have #lupus. In the newest episode of The Expert Series, you will learn about Becoming a Self-Advocate.

Quoted @NHCouncil

How An Advocacy Group Elevates The Patient Voice In Research And Clinical Trials, By Stevan Gibson, president and CEO, @LupusOrg https://www.clinicalleader.com/doc/how-an-advocacy-group-elevates-the-patient-voice-in-research-and-clinical-trials-0001 … #puttingpatientsfirst

Our President and CEO sat with @ClinicalLeader to emphasize the importance in making sure patient voices are heard✊

Study further validates tool that supports better health outcomes in people with #lupus. Disease outcome tools are important to research, trials and drug efficacy. Read more. #LupusResearchNews

Caretakers and friends don't always come in human form. S/o to all of our amazing fluffy and fury companions!💜#NationalLoveYourPetDay
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Caretakers and friends don't always come in human form. S/o to all of our amazing fluffy and fury companions!💜#NationalLoveYourPetDay

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15
90

Early research finds potential link between a specific gut bacteria and #lupus nephritis. Read more:

DYK: Dr. Vivian Pinn is the 1st black woman Director of the Office of Research on Women's Health, @NIH, which oversees research & provides resources for those with lupus? 

TY Dr Pinn for improving the prevention, diagnosis & treatment of illnesses in women! #BlackHistoryMonth

DYK: Dr. Vivian Pinn is the 1st black woman Director of the Office of Research on Women's Health, @NIH, which oversees research & provides resources for those with lupus? TY Dr Pinn for improving the prevention, diagnosis & treatment of illnesses in women! #BlackHistoryMonth

1
12
45

Winter's cold and dry air can be a problem for many of us living with #Sjogren’s or #Raynaud’s, something many #lupuswarriors are familiar with. Take a look at a few tips that may help keep your Sjogren’s and/ or Raynaud’s in check.

No walk event in your community? No problem - become a virtual walker! In Alabama, Emmeicia got more than 50 people in her community to walk together and raised over $700! Grab your family, friends, and colleagues, like Emmeicia, and register for our virtual walk! #WTELN

Findings of new #lupus nephritis research are encouraging, may support future study into renal treatment for people with proliferative and membranous LN. Read more about the the study. #LupusResearchNews

This month's sharing the journey was about the support we receive from those around us. Reply to this tweet sharing something that a coworker, friend, or family member has done to make living with #lupus easier for you.

Happy #NationalCaregiversDay! We want to s/o all of the awesome caregivers that are dedicated to both our personal and medical care. They work tirelessly every day to work to provide support to those of us that need it the most. We are greatly appreciative!

A new study further validates #lupus drug, hydroxychloroquine (Plaquenil®). New data supports the safety of long-term use. #LupusTreatmentNews Read more about the study.

This #ValentinesDay, register for a Spring Walk to End Lupus Now® event and walk for someone you love. #WTELN #walktoendlupusnow

Last night, House-Senate conferees released a final appropriations bill, allocating $3.08B in FY19 discretionary funding. We are grateful to appropriators for increased funding to #strengthenFDA https://bit.ly/2SA2dGr 

A new study explored the prevalence and clinical features of peripheral nervous system involvement in people with #lupus. Read more about the study.

Study finds pericardial effusion significantly impacts children with #lupus. Read more about the study.

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