We looked inside some of the tweets by @LupusOrg and here's what we found interesting.
Inside 100 Tweets
Last Seen Profiles@MiNhyun_both1@Feytull17820465@____nene@cdsallecordoba@_TheKarishma_@HAL93076993@CHACHACANSPEAK@pENR2LNEhMC8D64@luke_menz88@Birds_N_The_B@Ramage_92@cygnethealth@jackdoyle901@BidyarthiKeto@shawnvanamburg1@aaied58
"We have learned a lot as 9 years have gone by since being diagnosed. We've learned just how important it is to be a unit in this process" Listen to Monique & Alvin share their #lupus journey as a couple & offer helpful tips from lessons they've learned. #blackhistorymonth
From our new President & CEO to our new Board Chair to our research awardees, take a look at @ACRheum's article for the latest rheumatology news.
Having an invisible disease can be quite frustrating when no one can see how we feel. But there are ways to communicate our feelings, wants, and needs with others that don't have #lupus. In the newest episode of The Expert Series, you will learn about Becoming a Self-Advocate.
How An Advocacy Group Elevates The Patient Voice In Research And Clinical Trials, By Stevan Gibson, president and CEO, @LupusOrg https://www.clinicalleader.com/doc/how-an-advocacy-group-elevates-the-patient-voice-in-research-and-clinical-trials-0001 … #puttingpatientsfirst
Our President and CEO sat with @ClinicalLeader to emphasize the importance in making sure patient voices are heard✊
Caretakers and friends don't always come in human form. S/o to all of our amazing fluffy and fury companions!💜#NationalLoveYourPetDay
Early research finds potential link between a specific gut bacteria and #lupus nephritis. Read more:
DYK: Dr. Vivian Pinn is the 1st black woman Director of the Office of Research on Women's Health, @NIH, which oversees research & provides resources for those with lupus? TY Dr Pinn for improving the prevention, diagnosis & treatment of illnesses in women! #BlackHistoryMonth
Winter's cold and dry air can be a problem for many of us living with #Sjogren’s or #Raynaud’s, something many #lupuswarriors are familiar with. Take a look at a few tips that may help keep your Sjogren’s and/ or Raynaud’s in check.
No walk event in your community? No problem - become a virtual walker! In Alabama, Emmeicia got more than 50 people in her community to walk together and raised over $700! Grab your family, friends, and colleagues, like Emmeicia, and register for our virtual walk! #WTELN
Findings of new #lupus nephritis research are encouraging, may support future study into renal treatment for people with proliferative and membranous LN. Read more about the the study. #LupusResearchNews
This month's sharing the journey was about the support we receive from those around us. Reply to this tweet sharing something that a coworker, friend, or family member has done to make living with #lupus easier for you.
Happy #NationalCaregiversDay! We want to s/o all of the awesome caregivers that are dedicated to both our personal and medical care. They work tirelessly every day to work to provide support to those of us that need it the most. We are greatly appreciative!
Last night, House-Senate conferees released a final appropriations bill, allocating $3.08B in FY19 discretionary funding. We are grateful to appropriators for increased funding to #strengthenFDA https://bit.ly/2SA2dGr
A new study explored the prevalence and clinical features of peripheral nervous system involvement in people with #lupus. Read more about the study.
Study finds pericardial effusion significantly impacts children with #lupus. Read more about the study.